I have to cut myself a break. Its okay to be sad or disappointed or even down right angry. Acknowledge it so I can move on! Today was James' awards celebration at school. It was an intimate gathering in his class. His teacher made a digital montage of the year in pictures that played on the big media screen while she handed out the awards. Then the school psychologist and the speech teacher gave achievement certificates. It was lovely and sweet and James sobbed, howled, and cried through the entire event. He begged anyone to get him out. He tried the speech therapist, his occupational therapist, even another parent. I tried all the tricks to calm him although I knew nothing to work. I knew he was constipated and wanted to go home. We drove home, James listening to his therpuetic listen CD. I pulled over 10 minutes in to the half-hour "session" to change the CD for the final 20 minutes His OT thinks it might be to intense for him so I am carefully limiting the exposure. Obviously it's working because he was great at his uncle and aunts house for Father's Day - even with two toddlers. Happy as a clam. As for the cause of his extreme upset-ness at school? Poor sweetheart didn't even make it up the front stairs before he went in his pull-up. I have to figure this potty thing out.
James does not go to the bathroom at school. This year we have seen him pee in his pull-up and that is HUGE. Previous teachers and administration put him on a schedule to "catch" him. Took him to the bathroom every 30 minutes. This schedule was adhered to at outside therapy, at home and even at Grandma and Grandpop's house. James simply stopped going. His diaper would only be full in the morning. As for number 2, we had to give him a suppository every few days and when he'd finally go, he'd be sobbing and hysterical. So I stopped the ridiculousness of the schedule and he eventually would go at home again.
Thank God for his teacher. She fought the administration with me, and James no longer has to follow the 30 minute schedule. It is a proven, potty training program that works for almost all autistic kids. For the rest? Some wind up in the hospital with bladder infections, bowel obstructions and even ruptures. His teacher says it in a nutshell: "James is his own man." Now James, comfortable again, occasionally pees in his pull-up in school but NOT poop. The only time he did, we wound up going to the pediatrician the next day where he was diagnosed with strep throat.
I am trying to figure out how to get him to use the potty, but so he thinks it is HIS idea. We tried the "naked baby" method. 13 hours later, James was bent over, miserable, with the most distended stomach. When he finally went - on the toilet - he sobbed and shook. No lesson learned. Like an idiot I did this for three days. Stupid stupid stupid. Back to square one.
Please don't suggest running water, pouring warm water over him, or other simplistic tricks like treats or rewards. Believe me, it has been tried. We read potty books, we have an open bathroom door policy. James has even sat on my lap and read books while I use the toilet. Talk about stage fright. It is weird he understands, he gets that we do it. He empties his diaper into, and then flushes the toilet.
I have him eating so much fruit and fiber so he cannot really "hold it" for too long anymore. For a short while he was pooping at the end of the bath as the water drained and would then quickly get out. Freaky yes. Could this somehow translate to the toilet? Maybe! It was the bathroom. We would clean up and flush everything away. Sadly he stopped. He was probably on to me.
Wednesday, June 23, 2010
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Current Books 1/21/15
- "A Drop of Blood" by Paul Showers
- "A Kid's Guide to the American Revolution" by KidCaps
- "Gravity is a Mystery" by Franklyn M. Branley
- "Liberty or Death, The American Revolution: 1763-1783" by Betsy Maestro
- "The American Revolution from A to Z" by Laura Crawford
- "The Declaration of Independence from A to Z" by Catherine L. Osornio
- "Why I Sneeze, Shiver, Hiccup, and Yawn" by Melvin Berger
Current Movies 1/21/15
- Bob the Builder (any & all)
- Disney's "George of the Jungle"
- Disney's "Robin Hood"
- Disney's Frozen
- Entourage (all seasons, edited by Mom & Dad)
- The Rookie
- The School of Rock
Current Music 1/21/15
- Another Very JD Christmas
- Bob the Builder
- CBS 101.1 FM (Oldies)
- Daddy Mix 1 & 2
- Peter, Paul and Mommy
- School of Rock (soundtrack album)
1 comment:
as a preface-my friend's son is 15, 6 ft 3, 200+ lbs and in pull up. but she is unwilling to go the ABA route also. i hate to see that happen; it is worth the trouble. having said that..
moonface is clearly in control of his toileting and is making choice about where to eliminate. I'm not sure where the problem exactly is but from what you describe, it seems a few times he did end up having to go in toilet and he was upset, but this seemed to upset you also, and you then abandoned the plan. do i have that right? he is bound to be angry that he is going in toilet, but he will likely get over it!!! can you give it a few weeks of him crying, shaking, etc? can you try not to use pull-ups at all during the daytime at the very least? especially if you have him 24-7 with no school? break now right? i am quite confident it would only take a few weeks...
just underwear only, timed bathroom (maybe 60 minutes since he has that strong motivation and ability to control it) and in addition, (yes, simple advice. simple like the laws of gravity-they work), but rewards for voiding on toilet? BUT no access to those rewards under any other circumstances..big things that he wants..places to go or lollipops was it? can you withold rfs for peeing and pooping on potty???? if he can access otehr things outside of toileting, those rewards for toileting are less effective.
i know, you didnt want advice. esp things like rewards that seem so simple..but it works. there is a lot of research on this. it's not just for kids with autism, it's for everyone. who knows why kids with developmental disabilities resist the toilet more than typically developing kids, perhaps they are less interested in social reinforcers for toilet training (maybe lol).
i am working with a 7 1/2 yr old girl with down syndrome, and she was quite determined not to use toilet. but boy did she hate being wet or dirty.. adn when underwear finally was on consistently and when mom brought her to toilet hourly (even when she said no), things went very quickly in the right direction. it's much easier when kids are small to seat them on the toilet. it may take physical "prompting", but then they can come off after 3 minutes. neutral affect is important!!! this can't become a battle that results in the parent getting obviously angry (or obviously sympathetic). after nothing happens and htey go off on their own (sometimes to eliminate in underwear), its time to calmly help THEM change into clean underwear. and continue on!!! for 2weeks at least!
pls try it for 2 weeks!! ok, sorry, i debated writing this. but i just don't feel right not at least giving it a shot.
<3 <3 <3 E-you are a great mom and the three of you are a gorgeous family. keep going! and please keep writing about it. i've been there, and your insight and reasoning and approach is very helpful to me.
for some reason i am unable to comment as "puzzling along" so im commenting anonymously because i cant get through this screen..but it's me lol.
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