Saturday, April 6, 2013

My Frankenstein

Good News?  James actively uses his iPad. I have to be alert and charge it every chance I can so it doesn't run out of batteries.  He uses it alone in his room, looking at the images we have added to his communication application (ProLoQuo2Go) or playing with the books or educational games. It is awesome to see. He still listens to music and reads physical books, but has to have this iPad close by.  When we are in "school," James not only responds to my questions, he often offers unsolicited comments, which are my favorite.   Unfortunately, James still holds my pointer finger for support, stabilization, and/or comfort.  A recent push by his therapists and I to break this dependence, was met by an almost week-long, refusal to type.  I think slow and steady pull back is best.  Regardless, this Friday, James' comment was not well-received, especially considering i have to "help" this kid type. . .

Needless to say, this was awful.  After a lengthy time out,  the lovely phrase was repeated a third time.  Now, not only was he in his room but every toy, book, movie, blanket and pillow was removed.  Bizarrely, it was easy.  As he sobbed, I took the opportunity to clean up some dust bunnies I had never seen before.  Then I explained to him why we do school at home, why everything was difficult for him, and why he had to work harder than everyone else.  I reminded him how vitally important communication was for him.   It took an afternoon.  But James got it.  He came back. He told me he was ready to learn.  He apologized and asked me to "forget" what he said, that he was being mean.  Then we re-started school.  His next "spontaneous" comment?  "Math looks hard but is easy once you open up your mind."  Sigh.  He's awesome!

I try and remind myself (as I continually pray for patience and guidance), that I created this monster, both the good and the bad.

2 comments:

Liz said...

Prompt fading should be gradual! Good call!! Unsolicited advice: if you think the prompt is mainly for comfort try holding his other hand or another equivalent prompt. Maybe just a tap or pat on the typing hand? Or less prompting for simple responses and more when he needs more?

Intuitive Scribe said...

I so love reading about his progress. You are such a totally awesome loving mom! He's a super kid and an amazing person. Ah, yes, the apple doesn't fall far from the trees! PS I know David from the Art world and have been following James for years! Wishing the whole family a joy filled Spring!

Current Books 1/21/15

  • "A Drop of Blood" by Paul Showers
  • "A Kid's Guide to the American Revolution" by KidCaps
  • "Gravity is a Mystery" by Franklyn M. Branley
  • "Liberty or Death, The American Revolution: 1763-1783" by Betsy Maestro
  • "The American Revolution from A to Z" by Laura Crawford
  • "The Declaration of Independence from A to Z" by Catherine L. Osornio
  • "Why I Sneeze, Shiver, Hiccup, and Yawn" by Melvin Berger

Current Movies 1/21/15

  • Bob the Builder (any & all)
  • Disney's "George of the Jungle"
  • Disney's "Robin Hood"
  • Disney's Frozen
  • Entourage (all seasons, edited by Mom & Dad)
  • The Rookie
  • The School of Rock

Current Music 1/21/15

  • Another Very JD Christmas
  • Bob the Builder
  • CBS 101.1 FM (Oldies)
  • Daddy Mix 1 & 2
  • Peter, Paul and Mommy
  • School of Rock (soundtrack album)